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Home Association our Lady of Joye A unit of 8 persons, outside walls but an integral part of the MAS Notre Dame of Joye, Paris, France
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Association our Lady of Joye
  • 71-73 avenue Denfert Rochereau 75014 Paris France
  • +33 (0)1 43 26 56 45
  • Richard Pivetta
  • MAS Notre Dame de Joye

A unit of 8 persons, outside walls but an integral part of the MAS Notre Dame of Joye, Paris, France

  • Inclusion : Citizenship / Transport
  • Europe : France
  • Experience Index Card

From Richard Pivetta the Aug 12, 2013

If the lack of places in the establishment is at the origin of this creation, is in the end a new project built on life in the neighborhood that helped 8 adults with multiple disabilities to live in complete internship in an apartment located in the 13th arrondissement of Paris.

The context

The association Notre-Dame de Joye was established in 1698. It is recognized as a public utility since 1858. In the 1950s it had girls in boarding school. In 1968 to parents of children with multiple disabilities, grouped within the association the friends of Karen have made an application to use a part of the premises. In 1972 the our Lady of Joye association amends its statutes. In 1974, she opened an IMP medico-social institution for multiply handicapped children's home. They have grown up and so was born the need for the creation of a MAS - specialized home for adults. This Mas which opened in 1980 a designed learning of life in community through a home in alternation, stays of boarding schools to which successive stays in day schools on two-week cycles. In 2013 it still works as well. Home to life Myriam has been added to the institutions on the site as well as a resource and documentation centre.

The MAS saw an extension in 1991 that offers 8 adults with multiple disabilities to live in complete internship in an apartment located in the 13th arrondissement, bringing the capacity of the MAS to 42 disabled poly or multi. The average age is not significant. A group of a dozen of youth alongside another group of 40 years and more. The alternation is a satisfactory solution for residents and their families, as long as families can welcome them. However the establishment faces difficulties in terms of shifts to complete internships within other structures.

The origin of this creation, a lack of place in the establishment

The idea of this 13th apartment was simple. Having more room in boarding school on the site, we have created an accommodation outside walls. The original idea was to reproduce the externat home inthe 14th to take advantage of the day's activities. But the evening in place of the family return, residents returned in their apartment from 13th.

The lack of space and promiscuity on the site of the 14th day, as well as the rate that it imposed on residents led us to build a new project based on a life in the district.

Those who went to these apartments were those who were less heavily disabled. It was people with a heavy IMC profile, with a severe physical handicap, but average intellectual disabilities across the polyhandicapped. The test was to be able to bring a spoon to the mouth. The admission brake hold medical dependency to any other limitation.

The operation of the unit of the thirteenth for 8 residents

This is the opportunity to apartment that led us to the number 8. These apartments in public housing have been opened in early 1991. Several housing gathered on the 1st floor in abatant partitions. Today the whole consists of two wings where live four boys and four girls. The total surface is of about 575 square meters, in which were found two bathrooms and a kitchen. The rooms are small, the size of Paris apartments. It is a unit of life as in all other MAS. Professionals arrive in seven- and -a-half hours and leave at a time, with a team in the morning and one evening. A night Porter is present on-site. To assist in case of need, there are liners, i.e. students who have three rooms on the ground floor. We are also bound by a convention, which regulates the status of these students, with the IPC de Paris (Faculty of philosophy and psychology).

In the day residents have activities on-site and out in the district. The activities are proposed by the facilitators. They sometimes return to the site of the MAS, for events or special care. There may be exchanges between residents of the 14th and 13th for stays of rupture. The meals were made in the apartment by a catering service. Today they are supplied cold liaison, compliance with HACCP standards. The preparation of the texture remains developed on-site.

The resources allocated

The personnel involved on the project is identical to that of a mini-etablissement. The Department head has great managerial autonomy. There is a lingere, a half of service agent of watchmen. Total 18 FTES involved on-site, mainly of the AMP and three assistants, all graduates, as well as a nurse. To this must be added the working time of administrative, medical and paramedical staff on the main site, dedicated to the residents of the 13th.

We also make use of the resources of the district, especially for its nursing services. The salon and the restaurant in the corner, participate in the life of this service.

The apartments are rented by the real estate association to the RIVP - governed by the city of Paris. Residents pay the daily fee, as in all the MAS

The major obstacle to this project remains the cost instead. Moreover, the fragility of this type of home is based on the low number of framing professionals induced by the small number of residents welcomed. As soon as one of them cannot come to work, (disease, sick children,..) Although this may be early it becomes difficult to consider the outputs in the district due to the necessary minimum supervision ratio: 1 for 1 for outings to 1 in 3 residents in the apartment. Therefore, the implementation of the project remains fragile.

Education, evolution

Satisfaction is obvious. Families and residents make us positive returns despite the mentioned drawbacks. It really is family life! In addition families getting easily on-site, some come all afternoon. The site brings a lot of wellness to residents and professionals are happy to work there, the identity of unity is very strong.

A desirable development would be moving to twelve in order to decrease the cost instead. But within these premises it is currently impossible.

A MAS with several units of twelve who can help each other meet the needs. The major problem would however remain the night; a watchman for eight or twelve it is very fair for this extremely fragile population. Therefore, in these small units, the risk to be accepted to the extent reasonable.

De-institutionalisation, home at any cost is not a dogma. The creation of the MAS, residents had a limited life expectancy. Today the adapted supported, the evolution of medical techniques, and the stimuli offered by the MAS participate in the increase in the life expectancy of multi-disabled people. Also today the question arises of aging multi-disabled persons and accompanying techniques that it will require.

Canonical language : French
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