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FONDATION DES AMIS DE L'ATELIER
  • 17 rue de l'Egalité 92290 CHATENAY-MALABRY France
  • 01 46 29 59 00
  • contact@nullamisdelatelier.org
  • mpaka
  • crhpkin@nullyahoo.fr


Fight to pass a normal life

  • Social Life : Personal and emotional
  • Europe : France
  • Testimony

From mpaka the Aug 06, 2010

Fight to pass a normal life.





My name is Virginia, I was born October 21, 1980 in Blanc Mesnil in France, Spanish father and a Vietnamese mother.



I suffered from a genetic orphan (progressive familial spastic paralysis) me paralyzed legs gradually.

I lost balance and fell frequently unable to get up alone. The walk was very tiring, hence the wheelchair.



When I saw people run or play, it gave me the urge to do the same. Before, it made me very badly, now I'm used to. I have no complexes with respect to my disability. I have friends who accept us valid as we are and we laugh together.



A nursery school was the only person with a disability. I do not remember what feeling I had when other able-bodied children. Since then, I have only attended special schools where I took cooking classes, French, mathematics and geography.



To balance my body, I did a bit of sport: football chair, swimming and slalom. I even made the drawing, but I lost the hand when I left school in 2002.



Since it was a struggle to succeed a normal life, I needed to learn a trade to 21.



Training:



While I was in school I did a training course at the ESAT (Establishment and support service to work) in the workshop package.

Then I went home life where we do a lot of activities: painting, costumes for shows, drawing, trips. That way I did not like, I gave up.



Then I went back to school to continue general education: French, math, geography, etc ... while waiting for a spot in the ESAT / Foyer.



In 2002, I had a place in the foyer of the Kremlin-Bicetre, and two years later the school moved into new premises in the 'Les Cedres' where we are to this day.



A modern designed and built for a life suitable for people with disabilities, as opposed to the old home where toilets and showers were common and located in the corridor. In addition we were with other tenants, it was not with us.



I feel good at home or we are taught self-reliance. There are machines for washing and ironing. We have the opportunity to do internships in the studio, that is to say, to learn independence, cuisine, shopping with a teacher.

And if it is positive, then went on to learning to live in an apartment with a little more autonomy.

In short, we are taught to properly prepare yourself for life.



As for the work at the ESAT, I'm glad the environment adapted to our condition. We do many things such as: the assembly of pumps, folding T-shirts, make catalogs for wine in envelopes and ship them, put alarm clocks in the packing boxes, etc ....



Finally I can say that we are well supervised at Home "The Residence The Cedars." We celebrate birthdays together, we make the transfer (remote output for holidays), excursions, we're going to winter sports, etc ...



My big life plan is to live in an apartment with my boyfriend. Unfortunately the apartments are not equipped for disabled guests.



To conclude, I would like people like me who suffer around the world with better living conditions, although they have different means.



Always fight to pass a normal life.











Collected by Celestin Mpaka MAKING

Head of Department of Rehabilitation

Functional HPCN / Kinshasa
Translation Project

Canonical language : French
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